The first part of our journey

On your mark, get set, GO. . . read about my exciting, thrilling, action packed, and most of all mudane life. Well up until recently it was mudane. On July 6th I had my first child, Blake Matthew Hill. He was 17 in long and weighed in at a whopping 6 Ibs. I gave birth at 8:55 pm by the next morning he was at kosairs. The doctors found he had an interupted aortic arch(his arch wasn't connected to allow blood to pump to his lower half) and a moderate sized VSD(a hole in between his ventricles, the lower two chambers of the heart). They scheduled surgery for Tuesday, July 10th. They had to open my baby's chest up and he had to be put on the bypass machine. I had never been so scared. I remember thinking I just half to stay calm and think positive. I believe my husband and I did the best we could. Blake made it through the surgery he had to have his chest stay open for five days because he was to swollen for them to close. Those five days where the worst, especailly the first three. His blood pressure wouldn't stay up and his heart rate was to high. The doctors said he was just going along a little slower than they had expected. Finally on the 14th he started to turn around they were able to close his chest on the 15th. He was unintibated on the 20th and he was allowed to return to the NICU Monday the 23rd! Well he was doing pretty well up until last Friday, August 17th. He just wouldn't eat. He had to have his feeding tube put back in and that's when I found out about that his kidney's weren't doing well. Then Sunday my husband learned that he would have to have another surgery to fix stenosis(narrowing) in his arch. He is having his cath done tomorrow, they had to wait for his kidney fuction to improve. Since finding all this out, Blake's had alright days and so-so days some days he's seems so exhausted he had to have a blood transfusion last Friday his hemoglobin wasn't high enough. Here's to hoping everything goes great tomorrow. He's also been diagnosised with Williams syndrome. But I'll have to leave that for another post. Here's to hoping everything goes great tomorrow and if anyone reads this before than maybe you can say a littel prayer for my sweet boy.