Good News first because I'm an optimist (you live longer if your an optimist!)
1. Laura and Kim, Ava's mom and Grandma, are awesome and sweet!
2. Everyone that's in this blogging family cares so much for Blake and me and i'm so grateful, I can feel your love from here thanks everyone for caring for my angel.
3. My family and our friends from home are their for us as well, my mother in-law Janice is so sweet.
.4. Blake hasn't desated all day and he's not paralyzed anymore but. . .
Bad NEWS
Blakes been intubated for 17 going on 18 days, they haven't been able to wean at all! About every four hours he has these episodes where he desats and then has the air also on the outside of his lungs. Evertime the air escapes like that it can cause your lung to colapse and it horribe for you lung weaken the walls everytime. So everytime this was happening they would bag Blake and pretty quickly paralyze him. The past few days they put him back on the continues paralyzing drip. He's been paralyzed since Friday. They've checked his dyaphram with a CAT scan, they checked his lungs with a CAT scan, they checked his throat with a bronchoscope, they checked his head earlier with a CT scan, EEG, and ultra sound now they did all that again today. Tomorrow they're going to do an MRI. They haven't got the results on the brain scans yet hopefully neurology will talk with me tomorrow. They're having this pallative care team talk to us(IT'S THE HOSPICE TEAM!!!!!) Yes they're telling Troy and i they can't keep Blake intubated forever, he might have brain damage and we might have to make some tough choices soon. I don't think this though, Blake was responding to me today once the paralytic wore off. If he was so severly brian damaged that his body has forgotten how to breath it just seems like he wouldn't be their anymore. But He is I KNOW HE IS!!!! I LOVE HIME So much!!!
Knews I just don't know how to feel about right now, I'm pregnant!!!
Okay so pray for my sweet sweet boy he's strong and he's hard headed and does things his way no matter what the docs do. So I just know he'll pull through. I can't wait to hold my sweet sweet boy.
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35 comments:
Oh my gosh. You are truly experiencing the ultimate test of faith. You, Blake and your family are in my daily prayers.
Try to be happy about your pregnancy. God has a plan.
Oh Whitney, I admire your courage, Blake is a true fighter and we are all praying for him.
Congratulations on your pregnancy - Im sure its such a hard thing to think about right now, you will get time. I hope that you are feeling physically well and know we are all here for you.
love Katie
Whitney - You all are in my prayers. Your strength and courage awe me. I know it's probably hard right now, but what a miracle to have another little life growing inside you. Know that I am thinking of you and that Blake continues to fight. He is so precious.
First of all Whitney, a new baby is such a blessing. I know that it must be hard to feel happy about anything at this point. But I am happy for you. Secondly, Don't give up your hope for Blake. These little WS kiddo's have the strongest will's on earth. I know he is a fighter because mine is the same. I really want Blake to pull through this, and am praying like crazy for him,and the whole family. Come on Blake,you can do it buddy! Whitney, take care of yourself please, and hang tough. much love, Heather
Whitney you are one strong little chickie. You are the same age as my oldest daughter and I don't know if she would have this kind of strength. Believe me that is a compliment because she is a fighter. I truly believe this new baby is a blessing, although I understand why you are having difficulty with it. I love you guys and continue to pray. I meant what I said, If you need anything call.
We will pray for all of you and Blake.
I am sending as much love as I can your way. I want so bad to make things okay for you guys! I just want you to get to hold him, I know that it would help. It is so hard to think positive but I think that you have too.
If there is ever anything....
Noel
No words of wisdom here, sorry. Just know that you and Blake are in my thoughts and prayers every day.
You have so much going on right now. We are all thinking about and praying for you and Blake. Please keep us posted on his progress.
Thinking of you guys!
Let us know if you need anything.
You have so much going on right now. We are all thinking about and praying for you and Blake. Please keep us posted on his progress.
Thinking of you guys!
Let us know if you need anything.
Prayers for you and your family over here~ little Blake is such a fighter. Thinkin of you ~
Hi, Whitney:
Laura, Ava, and I stopped in to see you today but you weren't there. Sorry we missed you:( We left a love note for you on the whiteboard. I hope today (Feb. 23) brought good news.
Your strength and optimism are so inspirational. I don't know how you do it. Laura and I are praying so hard for you and your family. Also, thank you so much for taking the time to visit Ava. It meant a lot.
Love to you and your family,
Kim
Praying for you. Congratulations on your pregnancy. I'm not sure what I believe about God having a plan, but I know that this all goes together in the big puzzle somehow. Take care of yourself.
Hi, sweetie,
I know you are busy with Blake. Mom told me Troy and Brandon are headed up to be with you so I know you will have less time to talk. Just wanted you to know I'm here in DC thinking of all of you and keeping updated as much as I can.
I'm happy about your pregnancy and want you to take good care of both of you. Blake will have fun with a little sibling to stimulate him and play with him! Wolfgang also likes the thought of another cousin (althoug he has no clue the difference between boys and girls right now so has no opinion on if he wants you to have a boy or girl).
LOVE YOU!
Tiffany
I with Tiffany thinking about you too. You are so brave I can not wait to see you and Blake again, I give you a call in the morning on my way to wk.
Whitney, Just wanted to let you know that you, Baby Blake and family are in my thoughts and prayers every day. Take care.
Hi Whitney,
I have never met and and honestly never read your blog before today. I was reading up on my good friend, Tara Littlejohns, blog today and found myself reading all her friends blogs. I wanted to let you know that I'm praying for you and your family. God is with you through this and the more people praying for you the more you'll feel and experience Him! I pray that GOd will richly bless the pregnancy and Heal Blake!
Praying for you!
Mandi Miller
(from Missouri - Near St. Louis)
My family and I are praying for you and yours. Our kids are so strong and resiliant, and Blake responding to your voice is such wonderful news! Congratulations on your pregnancy. I know that my son loves his baby sister, and she adores him right back.
I'll be thinking of you and your family.
Whitney..we have never met, but my niece, Clare, also has WS. I read on her blog that Blake was struggling. I just want to offer my prayers and well wishes for all of you. The prgnancy will be exciting as time goes on. God never gives us more than you can handle with His help. Prayers are sent your way today, and always.
I admire you so much. You are so strong and Blake is such a fighter. Take care of yourself and congratulations on your pregnancy. God has a plan and everything will work out perfect!! I will be anxious to hear more updates. Hang in there - I'm thinking about you and praying for you all the time.
Whitney
I heard about your story from reading my neice, Clare's blog. I wanted to offer my support and to let you know my prayers are with you and your family.
Becky
We love you Whitney. Please let us know if there's anything we can do to help you and your family.
Whitney I am at a lost for words. PACT has been in to meet with us a few times this week, so when I saw that they have been in to see you, it made my heart ache. I can't even begin to imagine the flow of emotions you are going through.
Please let me know if I can do any thing for you and your family. My cell phone # is 609-602-2943 and my personal email is ampendrak@yahoo.com, anytime you need to talk, I am hear for you.
You, Blake and your family are always in my thoughts and prayers.
I don't know about you but I myself am not as strong as everyone believes, I'm not sure if this makes sense but if you need help with finding strength try to focus on every time Blake has made you smile. I have Ava's room filled with pictures from home so I try not to think of her with all of her tubes and such. And one other thing keep touching your belly!
I am sending much love to you, Blake, your family and that little being growing inside you.
Anna
Whitney
I wanted to tell you that along with everyone else, my thoughts and prayers are with you at this time. I am a friend of Lisa tatum's mom and I have been following your blog for a long time and think about you and baby Blake all the time. I have a five month old son and last night after reading Lisa's post, I picked him up from his crib and held him and cried for so long. I wish there was something I could do for you, but know we have prayed and we are so grateful to you and Blake and will always remember him and remember how lucky we are for every minute we get with our babies.
Whitney, I love you sweetie. I'm thinking of you and praying for you. Please let us know if there is anything we can do. You and Blake are both an inspiration to me.
Whitney & family - Please accept my prayers for your recovery. I know God is with you, and He will always be there. Look deep inside to find the strength you'll need in the coming days. Know, too, that even strangers are sending their love and prayers as you go through this hell. Blake will always live on in our thoughts and memories. Love & peace, Joan Gruendler
Whitney I am sending all my loves, prayers and strength that I have to you. I am so deeply sorry for any pain that has come into your heart. May the miracle you have growing inside of you help you and your family heal.
Much love,
Anna
I am a stranger, but love another little one with Williams Syndrome very deeply. I have cried many times for you today, and I pray whole-heartedly for your family's healing. Strangers all over know about your precious Blake, and they care!!
Blake Matthew Hill
July 6, 2007 - Feb. 26, 2007
My sister will be posting later, I'm not sure when, but I wanted to get the information out to all of you lovely people who have supported her, Troy, Brandon and Blake throughout.
Visitation and services will be at:
Gehlbach and Royse funeral home
318 E. Chestnut St.
Corydon, IN 47112
(812)738-4131
Visitation:
Friday, Feb 29 12 noon - 8 p.m.
Saturday, Mar 1 9 a.m. - 2:00 p.m.
Service starts at 2 p.m. on Saturday.
Expressions of sympathy can be sent to the funeral home or donations made to the Lili Claire Foundation.
Whitney - It may be some time before you get on to read these comments. We have all been so touched by Blake's journey and that of you, Troy, and Brandon. Thank you for sharing this experience with us, even through the pain and heartache. I cannot imagine your grief right now. We are all grieving with you, even though many of us never met Blake. He is so blessed to have an amazing mommy and daddy and big brother during his months on this earth. He is even more blessed by His Father in heaven. I pray for you daily, Whitney. I hope you can find the joy in your new pregnancy and new little life while mourning the precious life you have lost. We will always remember Blake. He has touched our hearts and our lives. God bless you,
Teresa
Dear Whitney, Troy & Brandon,
Our hearts go out to you during this incredibly difficult time.
Please know you are in our thoughts and prayers.
Love,
The Spinney Family
Whitney,
I wish that there was something I could do or say to make this easier on you. I can not stop thinking about your family or Blake. I hope and pray that you will find peace in your lives. I want you to know that I am more than willing to listen to anything you have to say, good or bad. I have several friends who have lost children at various ages and know that sometimes just having someone listen is the best thing anyone can do. I wish that I could help you make your heart hurt less.
All my love and prayers,
Noel
Hannah wants you to know that she is very sorry and wanted to send you a doll she made at school. It is called a "worry" doll and you are supposed to put it under your pillow and it will make feel better about things. I will send it with a card.
Whitney, Troy and Brandon, Just want to let you know that we are thinking of you all constantly. My thoughts and prayers are with you and your family. with much love and sympathy, Heather and Family
Dear Whitney,
I am thinking of you tonight. I just read the comments people have left for you and I can't help but cry about how little Blake touched so many people. What a blessing he was, and is.
You can call me any time for any reason.
Love, Kim
I've been thinking about you, and I can't express how sorry I am for your loss. You are in my prayers. Stay strong, you will get through this. I sent a card, but it was returned from the hospital. Just wanted to show my support.
God does have a plan. And I will pray for your pregnancy!
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