Wishing I was home with Blake

I know we've only been up here since Jan. 29th but I miss Indiana and playing with Blake. I'm home sick. I'm not strong and rugged. I like my nice comfy bed, my soft sofa, and my big screen TV with that thing built in where I can pause and rewind live TV. I never camped as a child. Eww sleeping in a hot R.V. or worse OUTSIDE..........I'm not stong ahhhhh.

Blake's about the same as yesterday. They had to put a chest tube to vent air off the outside of his left lung. Both his lungs weren't venting well yesterday. After the tube was put in things improved. They had to go up on his vent settings yesterday around all that trouble, but he's back down today. He looks a tad bit more swollen he actually gained more fluid Friday to Saturday because they had to decrease his Lasix. His outter tissues are wHere all the fluid is sitting but he was actually dehydrated um like his cells internally. I'm not a nurse I kind of get it the fluid needs to flucuate. If they kept up on the higher doses they would hurt his kidneys more which are already not as great as they should be. I know that's to be expected. Nothing works just fine and dandy right after all he's been through and Blake's kidneys and liver where well never quit up to par on a good day, but functioning okay. Their actually going to try to wean him slowly back up on the lasix again today. 2 days on the lower end and probably about 2 days on the higher end. Back and forth trying to pull as much fluid off with dehydration and hurting the kidneys. The more fluid though the more pressure on his heart and the more fluid in his lungs. It's this great big balancing act. I wish their was a magic get better pill that cured all. You have your surgery you givem' the pill, boom bot-a-bing, everything back the way in was.

A room opened up at the Ronald McDonald house so we had to move. Since the hotel room per night that's in the hospital is much more expensive than the Ronald McDonald house. The Lili Claire foundation is paying for our lodging which I am very appreciative of. Their just wasn't an opening so that's why we had the luxury of the hotel til now. I'm thankful, thankful, thankful for their generousity that's why as soon as we got the call we started packing. I just don't like having a bed time. No one is to be out in the common areas their after 11 p.m. but your not allowed to eat in your room. I haven't been sleeping and will wake up and snack(I know not the best idea) or would go see Blake. Now if I want to see him in the middle of the night I have to walk half a mile in the cold. Like I said before I'm not rugged. Did I mention theirs no TV in our room. Remember I was born in the 80's I grew up while all this high tech stuff was growing up to.

I hope everyone is having I nice weekend. Praying that I can hold my big strong boy soon.